Comfort for Caregivers in Chaotic Times

~ SPECIAL EDITION ~

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EDITORS NOTE: If you are anything like me, the past few months have been a roller-coaster ride on every level. Each day brings news of more trouble, crisis and confusion. The world wide scale of sorrow and pain is almost too much for me to wrap my mind around. I’ve attempted to update this blog several times since the last post in January, but have not been ready to do so until now. I wanted to wait until the “dust settled” on COVID-19 so that I could provide accurate and timely information that would be useful for all caregivers — information that could be applied to each reader’s life and circumstances.

I choose not to focus exclusively on all the negative news. I choose instead to focus more of my attention on uplifting and positive messages. I have learned over time that it is better to focus on the problem solver, rather than the problems over which I have no control.

Today’s post is all about spiritual renewal in difficult times. Why? Because it is my belief that until we as caregivers get our spirits in the right place, nothing else matters. I believe in the power of God’s Word and prayer as the right tools to get us there. That is why I’ve selected Psalm 119, a scripture passage written in the form of a prayer. We can pray it over ourselves, our loved ones, our nation and our world. I pray that it will renew your spirit, refresh your soul and edify your faith. None of us knows what tomorrow will bring, but we know Who holds our future. ~

This post may be too long to absorb in one sitting, so I challenge you for the next twenty-two days to take one section per day, meditate on it and let it sink into your spirit. Ask the Holy Spirit to reveal to you how it applies to your life before reading it out loud as a prayer. Afterwards, listen to the corresponding song to reinforce that day’s main theme. And don’t forget to share a link to this post with anyone you know who is in need of spiritual encouragement.

A link to each song is provided below each written section.

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SPECIAL NOTE: If you lost a loved one during the COVID-19 pandemic, please know that our prayers are with you and your family. Grief Share is a an organization that specializes in a faith-based approach to dealing with the grief process. It has been a great help to us and millions of others around the world. It’s free, global, and online. Before the pandemic, local groups met mostly in person; now there are groups that also meet “live” online. To find a group near you, click on the link below and enter your zip code. You’ll find all the information, wonderful people and tools you need to support you in your journey of grief.

https://www.griefshare.org/

PSALM 119

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Your Word Is a Lamp to My Feet

This psalm is an acrostic poem of twenty-two stanzas, following the letters of the Hebrew alphabet; within a stanza, each verse begins with the same Hebrew letter.

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DAY 1

א
ALEPH.

Blessed are those whose way is blameless, who walk in the Law of the LORD.

Blessed are those who keep His testimonies and seek Him with all their heart.

They do no iniquity; they walk in His ways.

You have ordained Your precepts, that we should keep them diligently.

Oh, that my ways were committed to keeping Your statutes!

Then I would not be ashamed when I consider all Your commandments.

I will praise You with an upright heart when I learn Your righteous judgments.

I will keep Your statutes; do not utterly forsake me.

DAY 1 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 2

BETH.

How can a young man keep his way pure?

By guarding it according to Your word.

With all my heart I have sought You; do not let me stray from Your commandments.

I have hidden Your word in my heart that I might not sin against You.

Blessed are You, O LORD; teach me Your statutes.

With my lips I proclaim all the judgments of Your mouth.

I rejoice in the way of Your testimonies as much as in all riches.

I will meditate on Your precepts and regard Your ways.

I will delight in Your statutes; I will not forget Your word.

DAY 2 SONG OF MEDITATION:

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DAY 3

GIMEL.

Deal bountifully with Your servant, that I may live and keep Your word.

Open my eyes that I may see wondrous things from Your law.

I am a stranger on the earth; do not hide Your commandments from me.

My soul is consumed with longing for Your judgments at all times.

You rebuke the arrogant—the cursed who stray from Your commandments.

Remove my scorn and contempt, for I have kept Your testimonies.

Though rulers sit and slander me, Your servant meditates on Your statutes.

Your testimonies are indeed my delight; they are my counselors.

DAY 3 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 4

DALETH.

My soul cleaves to the dust; revive me according to Your word.

I recounted my ways, and You answered me; teach me Your statutes.

Make clear to me the way of Your precepts; then I will meditate on Your wonders.

My soul melts with sorrow; strengthen me according to Your word.

Remove me from the path of deceit and graciously grant me Your law.

I have chosen the way of truth; I have set Your ordinances before me.

I cling to Your testimonies, O LORD; let me not be put to shame.

I run in the path of Your commandments, for You will enlarge my heart.

DAY 4 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 5

HE.

Teach me, O LORD, the way of Your statutes, and I will keep them to the end.

Give me understanding that I may obey Your law, and follow it with all my heart.

Direct me in the path of Your commandments, for there I find delight.

Turn my heart to Your testimonies and not to covetous gain.

Turn my eyes away from worthless things; revive me with Your word.

Establish Your word to Your servant, to produce reverence for You.

Turn away the disgrace I dread, for Your judgments are good.

How I long for Your precepts!

Revive me in Your righteousness.

DAY 5 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 6

VAU.

May Your loving devotion come to me, O LORD, Your salvation, according to Your promise.

Then I can answer him who taunts, for I trust in Your word.

Never take Your word of truth from my mouth, for I hope in Your judgments.

I will always obey Your law, forever and ever.

And I will walk in freedom, for I have sought Your precepts.

I will speak of Your testimonies before kings, and I will not be ashamed.

I delight in Your commandments because I love them.

I lift up my hands to Your commandments, which I love, and I meditate on Your statutes.

DAY 6 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 7

ZAIN.

Remember Your word to Your servant, upon which You have given me hope.

This is my comfort in affliction, that Your promise has given me life.

The arrogant utterly deride me, but I do not turn from Your law.

I remember Your judgments of old, O LORD, and in them I find comfort.

Rage has taken hold of me because of the wicked who reject Your law.

Your statutes are songs to me in the house of my pilgrimage.

In the night, O LORD, I remember Your name, that I may keep Your law.

This is my practice, for I obey Your precepts.

DAY 7 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 8

HETH.

The LORD is my portion; I have promised to keep Your words.

I have sought Your face with all my heart; be gracious to me according to Your promise.

I considered my ways and turned my steps to Your testimonies.

I hurried without hesitating to keep Your commandments.

Though the ropes of the wicked bind me, I do not forget Your law.

At midnight I rise to give You thanks for Your righteous judgments.

I am a friend to all who fear You, and to those who keep Your precepts.

The earth is filled with Your loving devotion, O LORD; teach me Your statutes.

DAY 8 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 9

TETH.

You are good to Your servant, O LORD, according to Your word.

Teach me good judgment and knowledge, for I believe in Your commandments.

Before I was afflicted, I went astray; but now I keep Your word.

You are good, and You do what is good; teach me Your statutes.

Though the arrogant have smeared me with lies, I keep Your precepts with all my heart.

Their hearts are hard and callous, but I delight in Your law.

It was good for me to be afflicted, that I might learn Your statutes.

The law from Your mouth is more precious to me than thousands of pieces of gold and silver.

DAY 9 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 10

IOD.

Your hands have made me and fashioned me; give me understanding to learn Your commandments.

May those who fear You see me and rejoice, for I have hoped in Your word.

I know, O LORD, that Your judgments are righteous, and that in faithfulness You have afflicted me.

May Your loving devotion comfort me, I pray, according to Your promise to Your servant.

May Your compassion come to me, that I may live, for Your law is my delight.

May the arrogant be put to shame for subverting me with a lie; I will meditate on Your precepts.

May those who fear You turn to me, those who know Your testimonies.

May my heart be blameless in Your statutes, that I may not be put to shame.

DAY 10 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 11

KAPH.

My soul faints for Your salvation; I wait for Your word.

My eyes fail, looking for Your promise; I ask, “When will You comfort me?”

Though I am like a wine skin dried up by smoke, I do not forget Your statutes.

How many days must Your servant wait?

When will You execute judgment on my persecutors?

The arrogant have dug pits for me in violation of Your law.

All Your commandments are faithful; I am persecuted without cause—help me!

They almost wiped me from the earth, but I have not forsaken Your precepts.

Revive me according to Your loving devotion, that I may obey the testimony of Your mouth.

DAY 11 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 12

LAMED.

Your word, O LORD, is everlasting; it is firmly fixed in the heavens.

Your faithfulness continues through all generations; You established the earth, and it endures.

Your ordinances stand to this day, for all things are servants to You.

If Your law had not been my delight, then I would have perished in my affliction.

I will never forget Your precepts, for by them You have revived me.

I am Yours; save me, for I have sought Your precepts.

The wicked wait to destroy me, but I will ponder Your testimonies.

I have seen a limit to all perfection, but Your commandment is without limit.

DAY 12 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 13

MEM.

Oh, how I love Your law!

All day long it is my meditation.

Your commandments make me wiser than my enemies, for they are always with me.

I have more insight than all my teachers, for Your testimonies are my meditation.

I discern more than the elders, for I obey Your precepts.

I have kept my feet from every evil path, that I may keep Your word.

I have not departed from Your ordinances, for You Yourself have taught me.

How sweet are Your words to my taste—sweeter than honey in my mouth!

I gain understanding from Your precepts; therefore I hate every false way.

DAY 13 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 14

NUN.

Your word is a lamp to my feet and a light to my path.

I have sworn and confirmed that I will keep Your righteous judgments.

I am severely afflicted, O LORD; revive me through Your word.

Accept the freewill offerings of my mouth, O LORD, and teach me Your judgments.

I constantly take my life in my hands, yet I do not forget Your law.

The wicked have set a snare for me, but I have not strayed from Your precepts.

Your testimonies are my heritage forever, for they are the joy of my heart.

I have inclined my heart to perform Your statutes, even to the very end.

DAY 14 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 15

SAMEKH.

The double-minded I despise, but Your law I love.

You are my hiding place and my shield; I put my hope in Your word.

Depart from me, you evildoers, that I may obey the commandments of my God.

Sustain me as You promised, that I may live; let me not be ashamed of my hope.

Uphold me, and I will be saved, that I may always regard Your statutes.

You reject all who stray from Your statutes, for their deceitfulness is in vain.

All the wicked on earth You discard like dross; therefore I love Your testimonies.

My flesh trembles in awe of You; I stand in fear of Your judgments.

DAY 15 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 16

AIN.

I have done what is just and right; do not leave me to my oppressors.

Ensure Your servant’s well-being; do not let the arrogant oppress me.

My eyes fail, looking for Your salvation, and for Your righteous promise.

Deal with Your servant according to Your loving devotion, and teach me Your statutes.

I am Your servant; give me understanding that I may know Your testimonies.

It is time for the LORD to act, for they have broken Your law.

Therefore I love Your commandments more than gold, even the purest gold.

Therefore I admire all Your precepts and hate every false way.

DAY 16 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 17

PE.

Wonderful are Your testimonies; therefore I obey them.

The unfolding of Your words gives light; it informs the simple.

I open my mouth and pant, longing for Your commandments.

Turn to me and show me mercy, as You do to those who love Your name.

Order my steps in Your word; let no sin rule over me.

Redeem me from the oppression of man, that I may keep Your precepts.

Make Your face shine upon Your servant, and teach me Your statutes.

My eyes shed streams of tears because Your law is not obeyed.

DAY 17 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 18

TZADE.

Righteous are You, O LORD, and upright are Your judgments.

The testimonies You have laid down are righteous and altogether faithful.

My zeal has consumed me because my foes forget Your words.

Your promise is completely pure; therefore Your servant loves it.

I am lowly and despised, but I do not forget Your precepts.

Your righteousness is everlasting and Your law is true.

Trouble and distress have found me, but Your commandments are my delight.

Your testimonies are righteous forever. Give me understanding, that I may live.

DAY 18 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 19

KOPH.

I call with all my heart; answer me, O LORD!

I will obey Your statutes.

I call to You; save me, that I may keep Your testimonies.

I rise before dawn and cry for help; in Your word I have put my hope.

My eyes anticipate the watches of night, that I may meditate on Your word.

Hear my voice, O LORD, according to Your loving devotion; give me life according to Your justice.

Those who follow after wickedness draw near; they are far from Your law.

You are near, O LORD, and all Your commandments are true.

Long ago I learned from Your testimonies that You have established them forever.

DAY 19 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 20

RESH.

Look upon my affliction and rescue me, for I have not forgotten Your law.

Defend my cause and redeem me; revive me according to Your word.

Salvation is far from the wicked because they do not seek Your statutes.

Great are Your mercies, O LORD; revive me according to Your ordinances.

Though my persecutors and foes are many, I have not turned from Your testimonies.

I look on the faithless with loathing because they do not keep Your word.

Consider how I love Your precepts, O LORD; give me life according to Your loving devotion.

The entirety of Your word is truth, and all Your righteous judgments endure forever.

DAY 20 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 21

SHIN.

Rulers persecute me without cause, but my heart fears only Your word.

I rejoice in Your promise like one who finds great spoil.

I hate and abhor falsehood, but Your law I love.

Seven times a day I praise You for Your righteous judgments.

Abundant peace belongs to those who love Your instruction; nothing can make them stumble.

I wait for Your salvation, O LORD, and I carry out Your commandments.

I obey Your testimonies and love them greatly.

I obey Your precepts and Your testimonies, for all my ways are before You.

DAY 21 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press
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DAY 22

TAU.

May my cry come before You, O LORD; give me understanding according to Your word.

May my plea come before You; rescue me according to Your promise.

My lips pour forth praise, for You teach me Your statutes.

My tongue sings of Your word, for all Your commandments are righteous.

May Your hand be ready to help me, for I have chosen Your precepts.

I long for Your salvation, O LORD, and Your law is my delight.

Let me live to praise You; may Your judgments sustain me.

I have strayed like a lost sheep; seek Your servant, for I have not forgotten Your commandments.

DAY 22 SONG OF MEDITATION:

Psalm 119 Complete Courtesy of: Zion Christian Press


~~~

ADDITIONAL “LIVE” SONGS AND PRAYERS TO LIFT YOUR SPIRIT IN TIMES OF TROUBLE

Courtesy of: (IHOP Atlanta Live Stream (24/7)

https://www.youtube.com/watch?v=HGxB5szAe5Y&feature=youtu.be&fbclid=IwAR28j_nHKOkH_RCgovjdXrLSUtHWwXcmN4sRYmsC96l3G4IYS8cR889GrBs

~~~

Be sure to connect with us here on this blog or on social media. You’ll find all of our links at the bottom of this page. We love to receive input from our readers.

My next planned post will offer practical ways to boost our immune systems during this pandemic.

~May God reveal Himself to you in new and profound ways as we navigate our way through these difficult times, one day at a time. ~

WHEN A LOVED ONE PASSES

A LOVING TRIBUTE TO ESSIE RINGO

Photo courtesy of John Ringo

Some of you may be wondering why I’ve been absent from this blog since early September 2019. This blog post explains where I’ve been and what I’ve been doing since then.

For the past two months, my personal life has been on hold. This included my daily writing sessions. I did this so that I could help other family members care for a dear family member who was dying.

In a nutshell, I’ve been serving as a caregiver to my precious 90-year-old mother-in-law, Essie Ringo. A massive stroke left her bedridden and in need of Hospice care in early September. It was her personal wish NOT to be admitted to the hospital, but instead remain in her home, surrounded by family and friends during her last few weeks of life.

It is my highest honor to introduce you to her by sharing the picture you see above, taken by my husband on the occasion of her 90th birthday party on December 23, 2018. It was the BEST recent photo taken of her and one that our family will cherish forever.

I also want to share with you her remarkable story and WHY she was so dearly loved by so many who knew her.

ESSIE’S BACKSTORY

For most of her adult life, Essie’s life mission focused on caring for special needs/at risk children. She and her late husband, Basil Ringo started a home for homeless children back in the 1960’s. The home was associated with a large church (located in the same neighborhood) as an extension of the church’s community outreach ministry.

Essie had six biological children. Over the years, she and her husband also legally adopted four children whose parents were unable to care for them for various reasons. They then foster-parented over thirty other children outside of the government’s foster-parenting system. She and her husband never took a dime of government money to support their household.

They both worked full-time, (she as a nurse in hospitals and him at various jobs). They pooled their incomes with other employed adults from their church, some of whom were live-in assistants and had a heart for ministering to children. If the combined incomes were not enough to cover expenses, they relied on love offerings or in-kind donations from their church family to supplement their income and meet the needs.

Essie continued the work and mission her husband had begun for six decades after her husband died in the late 60’s. In recent years, she helped her youngest son (also a nurse) and one of her other adult sons (a deaf-mute) take care of one of her adult grandsons. A tragic car accident back in 2007 left her grandson in a coma, brain injured and confined to bed or a wheelchair for eleven years until his death in 2018. She and her sons faithfully cared for him in her home. Her sons took care of her when her own health began to fail over the last few years. Other family members contributed financial, emotional and respite support, when needed.

She was a woman of strong faith and possessed deep compassion for children. Her memory and legacy will live on in the life of every child she helped to raise. And what a remarkable life she lived!

In fact, at her birthday party last December, over two hundred of her family members, friends, along with current and former neighbors gathered at her church to celebrate with her over a potluck dinner. Person after person stood by her chair in front of the group and shared how they met her, favorite memories, funny stories and times when she made a life changing impact on their lives. Their stories brought laughter, tears and at times, spontaneous applause from attendees.

As I watched and listened to everyone speak, it occurred to me that this birthday party was like a wake, except that in this case, it was a chance for Essie to hear from people she loved and who loved her before she left this earth. What a wonderful day it was!

This is why I don’t regret one moment of the time I spent with Essie during her last weeks of life. In fact, I feel privileged to have been there for her in her time of need.

Essie moved to Heaven on October 14th, 2019.

Before she passed, Essie and I shared some very special conversations and inspiring moments I will never forget as long as I live. I will share one of those conversations with you at the end of this post.

First, I want to address an issue that is difficult for family caregivers to deal with—the passing of loved ones we have been caring for, and the end of one chapter of our care giving journey.

When the End is Near

Regardless of how long you’ve been caring for an ill or injured loved one, thinking or talking with them about end of life issues can be emotional and difficult. It’s a set of topics most people want to avoid. It is nonetheless critical to do so while your loved one can still make important personal decisions.

As hard as it may be, I believe it is vital that we have those difficult conversations. If for no other reason than to provide peace of mind to our loved ones and ourselves. Knowing in advance what another person’s personal wishes are before they become incapacitated can relieve much stress when the end is near.

Topics to consider include gently asking your loved one the following questions:

  • Do they wish to be in a hospital with palliative care or in a home setting with Hospice care during their final weeks of life?
  • Do they want a viewing prior to burial so that family and friends who haven’t yet done so can say their goodbyes? Or would they prefer a pictorial presentation of their life that celebrates who they were when they were healthy and happy?
  • Preferred type/method of burial (cremation vs. traditional burial). If cremation is chosen, where do they wish for their remains to be sprinkled, planted or otherwise distributed? If traditional burial is preferred, where do they wish to be buried and what do they want written on their headstone?
  • Would they prefer a church setting, a home setting or a favorite place in nature they enjoyed visiting in life as the backdrop for the final gathering of family and friends?
  • Financial considerations: have they purchased a burial package or an end of life insurance policy to cover final expenses and if so, who has legal access to the funds or documents? Who is legally authorized in advance to make decisions and act on their behalf when the time comes?

These decisions may seem basic, and yet if they are not made in advance, the caregiver, family members and friends are left to answer them after the fact, which can be an extreme source of stress for all concerned. Especially when not everyone agrees on how they should be handled and by whom.

Family drama should be avoided at all costs. The simple way to avoid family drama is to document a loved one’s final wishes in writing, on video, or by whatever means is at your disposal while they are able to do so. It’s difficult to argue with a dying person’s wishes when they are clearly spelled out in writing and signed/dated by them.  

A BEDSIDE CONVERSATION WITH ESSIE

At the beginning of this blog post, I promised to share with you a precious conversation I had with Essie during her last few weeks of life.

One day, as I stood by her bed alone, we began discussing angels, heaven, eternity and more.

We talked about all the family members who have passed into eternity over the years. This is a rather long list, as the Ringo family has lost so many members. It started with their father’s untimely death (when my husband was only six or seven years old), and continued as one by one, several siblings died way before their time—including Essie’s oldest son who committed suicide.

This large family has lost at least as many people as those who remain alive and well today.

After a brief pause in our conversation, Essie closed her eyes, as if drifting off to sleep. Then, a moment later, she opened her eyes wide and smiled.

“They’re ALL going to be there!”, she exclaimed in a loud voice.

“Yes, Essie”, I said. They’re all going to be there. The moment you step foot out of that portal into eternity, they will all be waiting to greet you! You’ll be able to enjoy a family reunion with all of them and you can update them on all of us who are still here on Earth!”

“Do you know the first thing I am going to do after I get to Heaven?”, Essie asked me. I reached for her hand and squeezed it gently.

“No, what are you going to do?”

“I’m going to give Jesus the biggest hug EVER!”

I smiled and said, “I’m almost jealous!” I paused. “Do me a big favor, mom?”

“Anything for you, sweet girl. Anything.”

“Would you give Jesus another hug from me and tell Him how much I love Him?” Tears welled up in my eyes and slowly ran down my cheeks.

Essie smiled again. “I most certainly will, darling. I most certainly will.” She closed her eyes and drifted into a deep sleep with a faint smile still on her face.

ANGELS ALL AROUND

A recently published edition of Chicken Soup for the Soul entitled, Angels All Around contains 101 true stories from ordinary people who have had extraordinary personal encounters with angels, or who have been impacted in some way in life by angels.

One of those stories is mine. Inspired by one of our granddaughters, it is a snapshot of a conversation I had with her when she was about seven years old about angels—in this case, a guardian angel. More on that in a moment.

Right after Essie’s stroke, family members from far and wide began to gather in the living room where her hospital bed had been set up by Hospice. They came in waves to say goodbye to their, mom, grandmother, great-grandmother and great-great grandmother. One day, I think I counted about thirty people or more crowding into the living room and spilling out into the dining room and kitchen area.

One of those people had driven with a friend all night from Arkansas to say her final goodbyes. It was the same granddaughter who inspired my story about angels so many years ago when she was a little girl. Now grown and living on her own, I wanted to gift her a copy of the story she inspired.

Before doing that, I asked Essie if she’d like me to read the story to her out loud, and she eagerly agreed.

I called all of the young people in the house, including my granddaughter into the living room.

Some perched upon couches, others stood or sat by her bedside. As I read the story aloud, tears began to fall, including my own. Essie had always loved the topic of angels and now was no exception. When I finished the story and closed the book, the room was silent. I felt such a sense of closure and peace. The fact that Essie got to hear the story before she moved to Heaven was somehow comforting to me.

In the weeks that followed, as the end neared, Essie began to talk about the angels she was seeing in the room. She described them in detail and informed whoever happened to be in the room with her, the exact moment the angels appeared to her. I knew they were there to prepare her for her final journey into eternity.

<3 <3 <3

Rest in peace, sweet Essie. You will never be forgotten. Your smile will continue to light up our hearts and minds, every time we think of you. I’ll love you forever and can’t wait to hug you AND Jesus when my time comes. Your name means “Star”, so every time I look up at a star filled sky, I will think of you and the love and light you shared with me here on earth.

From this day forward, I will treasure this beautiful picture of you and will do my best to follow your example, by living a life of service, and loving all those whom God puts in my path.

<3 <3 <3

Essie and me in late September, 2019

If you are grieving the loss of a loved one, click here for support: www.griefshare.org

OPEN DOORS: OPPORTUNITIES FOR GRACE, GRANTS & GROWTH

St Peters Open Door

As caregivers, it’s easy to limit ourselves by thinking small. We start to think that because we are full time caregivers, we will never be able to reach our own full potential.

The dreams, life goals and career choices we had before we became caregivers now seem out of reach, or worse, no longer possible.

Worse yet, we allow ourselves to believe that we have no future beyond the walls of our home.

  • We lose ourselves in the daily routine
  • We give up on the idea that we will ever be able to expand our horizons beyond our role as caregivers
  • We forget that someday, our care giving days may come to end and we’ll need a transition plan to re-start our lives
  • We forget that care giving for most people is a season of life, not a life sentence
  • We lose all hope.

It doesn’t have to be this way. But how do we get there? How do we get past the often harsh reality we deal with on a daily basis?

We do it when we:

  • Change our negative mindsets
  • Release our self-imposed limitations
  • Believe that we can change our lives for the better
  • Educate and empower ourselves.

But, you may argue: being a caregiver often leaves little time or energy to pursue other interests. True. But, if we use what precious little down time we do have to focus on taking positive action, we can start to feel better about the future.

If we allow ourselves to dream again and think about ourselves and our future, we open the door for hope to return.

We can benefit by educating ourselves. Read books on personal development. Learn new skills or develop old ones. Pursue creative interests.

Planning for the future can help preserve our current sanity.

A DARING DECISION

Six years after my husband’s accident, a social worker suggested that he enroll in college. Neither of us attended college after graduating from high school.

Instead, we both chose to go straight into the corporate world. We wanted to earn good incomes so we could afford a comfortable life.

He landed a good job with a small engineering firm as a draftsman. His award-winning drawings from high school helped him land his first professional job.

I worked as a temp for several large oil and gas companies in downtown Houston for about two years. Eventually, I had enough experience to land a permanent job at the local natural gas company.

The day my husband was encouraged to enroll in college, we sat in the social worker’s office stunned by her suggestion. It had been twelve years since he’d graduated from high school. Plus, a diagnosis of dyslexia during his childhood presented a challenge for him when it came to academics.

The idea behind the suggestion was for him to re-train for a new career. What if he could apply his manual drafting knowledge and skills to the (then) brand new field of computer-aided drafting?

He agreed. After more thought and discussion, his initial goal was to get a degree as a computer-aided draftsman (CAD). Then he could work from home and supplement our family income.

To achieve that goal, he first had to study Computer Science. It was the late 1980’s. Personal computers were in their infant stage of development at that time.

By learning computer-aided drafting, he could get in on the ground floor. Doors of opportunity with major employers could open to him.

He applied and got approved for a Pell grant. This grant covered tuition and all related college expenses. It also covered gas money for attending college and other associated living expenses.

Of course, as his primary caregiver, I would need to attend college with him. He needed someone to drive him back and forth to the college, located in a city an hour’s drive away from our home.

He would also need my help to navigate the campus, open doors, carry his books, take notes in each class, feed and help him with other personal needs.

It was a big decision that would require many changes to our daily routine. We discussed it in great detail. We prayed and asked for God’s guidance and help.

It was a huge leap into the unknown, but in the end, we decided to at least give it a try. We had nothing to lose and so much to gain.

Since a full time schedule was not physically possible for us, we opted for a part-time schedule on a trial basis.

THE BIG QUESTION

One day during a session with his student adviser, the counselor turned to me and asked an interesting question.

“Why haven’t you enrolled in classes too?”

Her point was that if I was sitting through every class with him, I too should be getting college credit for it.

I resisted the idea with everything in me at first. Why? I’d never sought nor desired higher education. I thought it was a huge waste of time and money. Besides, I was independent, a proud self-learner and stubborn.

At the time, to be honest, I didn’t see why I needed a college education. What was the point? After all, I was now a full-time caregiver. Why did I need a college degree? Deep down, I was scared. What if I tried and failed? I rationalized my fears by arguing that I didn’t need any more stress in my life. It was too much pressure.

Besides, I argued – computer science was NOT my chosen field. My personal choice would have been to major in English with a secondary degree in psychology. Learning about computers intimidated me. Besides, I was a word person, not a technical person (or so I thought at the time). I had failed every math course I ever took and was certain that learning computers involved math.

The counselor was relentless. She kept asking me the same question each time we met. I kept saying “no”. She kept trying to convince me to say “yes”.
Finally, I gave in and agreed to try and applied for my own Pell grant.

THE REWARDS OF SAYING “YES”

The end result was that I DID learn a lot about computers in the two and a half years that followed. We didn’t end up finishing our degree program. This was due to a job opportunity that was presented to us while we were attending college that we couldn’t pass up. But I learned enough basics to teach myself how to use computers from there.

Shortly after college, using money I’d earned from odd jobs, I scraped together enough money to buy my first PC. I used what little spare time I could muster to teach myself how to use a wide variety of software programs.

The rewards gained from this unexpected education?

My new computer skills helped me start a small home based computer business while I was a caregiver. I went on to land other technically oriented side jobs that I could do from home. These side jobs helped supplement our family’s meager disability income.

In early September 1997, my full-time care giving days came to an abrupt end. Three weeks later, I got a job in the space industry, working under contract to NASA, which turned into a successful twenty year career.

Had I not found the courage to enroll in college, I would not have gained the skills needed to land a corporate job.

Fourteen years of absence from the workforce due to full-time care giving was a huge gap in my resume. Without some college experience, and community volunteer work, I would have had nothing to fill in the blanks.

What saved me was the belief that I could learn and succeed at something outside of care giving alone.

AN OPEN DOOR

My brief experience in college served as a stepping stone to future success. I realize now that this education was a gift from God to me. It opened many doors for me after my care giving journey came to an unexpected end.

Having some college credits vs. zero got my foot in the door, despite not having earned an actual degree. That education and the discipline I gained as a college student still serves me well to this day.

Your personal care giving situation may be different than what mine was back then.
Perhaps you and/or your loved one cannot physically attend a brick and mortar college. That’s okay. In the 21st Century, you can still pursue education, formal or informal.

How?

You have access to something I didn’t have back then because it didn’t exist – an Internet connection.

Because of this, you can access thousands of online courses on the Internet from an equal number of online colleges or other learning institutions. Financial aid and/or Federal or State grants are also available via most online colleges. https://www.geteducated.com/free-college-scholarships/308-online-college-grant-and-free-money

It starts by making a decision to expand your horizons beyond your role as a care giver. Listen to your intuition and give yourself permission to identify and pursue your passions.

At the very least it will keep you focused on moving in a positive direction. It will also help you keep your sanity while you are a caregiver by giving you a reason to hope again. You never know where it might lead.

LIFE LESSONS LEARNED

Here’s what I learned…

Allow yourself to dream big again. Believe in yourself. Educate yourself. Empower yourself. Ask for God’s help and guidance. Look for opportunities and open doors. Have the courage to say “yes”, even if it scares you to your core. You’ll never know if you can do it until you try.

Will it be hard? Yes. Will you want to give up at times? Yes. Will you question why you ever agreed to step out of your comfort zone and expand your horizons in the first place? Yes.

Will it be worth it in the end? YES!

Revelation 3:8 Photo credit: honestaboutmyfaith.wordpress.com

THE HOUSE THAT LOVE BUILT – PART TWO

THE GROUNDBREAKING

The spring of 1992 brought not only an abundance of rain and spring flowers to the farm. It also brought renewed hope and excitement to our family.


After the winter rainy season finally passed, construction on the new house began in earnest.

Community work crews descended on the 1.5 acres of land where the new house would stand and got right to work. They started by clearing and preparing the land for laying the foundation of the home.

Bulldozer clearing land

Over the next few months, we watched our dream home materialize daily before our eyes. Piece by piece—like a child’s Lego creation, the walls, frame and roof came together.

Our pastor served as project foreman. His expertise as a community leader was on full display. He coordinated every facet of the building process.

This included recruiting and supervising laborers and securing donated materials. He also raised monetary donations to pay for materials that had to be purchased.

Volunteer laborers of all kinds came together with a single vision: to bless us with a home that would serve us well into the future. The home was 1232 square feet.

It was originally built as a two bedroom, two and half bath and was custom designed for lots of wide open living spaces and full wheelchair access. The master bedroom occupied one third of the total square footage and had an open design home office area on one end.

It was truly a community effort.

Volunteers raising a wall



Volunteers framing a house
A roof frame

After our morning routine, we were out on the construction site. We were eager to see what had transpired since the day before. I photographed and filmed all new progress made.

This was before cell phones even existed. So, I used “old school” technology to document this amazing project.

A cheap Polaroid camera for still shots. A bulky hand-held video camera that used tiny cassette tapes to record footage. To view said footage, it was necessary to plug the tiny tapes into a special VCR cassette tape and watch them via a VCR player!

My husband rolled around the construction site in his wheelchair, talking non-stop to the workers, making helpful suggestions and having a blast.

Our young daughter, then age 11, ran around the site with one of her best friends (the pastor’s daughter). She was so excited the day the workers framed out what would become her new bedroom!

Our daughter’s bedroom
A second view of our daughter’s bedroom study desk and closet.

I was most excited about the new “galley” style kitchen. The crowning jewel for me was the installation of a used Jenn Air stove top. It had a built-in exchangeable grill, griddle and burners.

The stove top was donated by a generous couple in our church who ran a Christian retreat center in the area. It had been in storage for seven or eight years and needed a lot of elbow grease to clean it up and get it ready for installation.

I brought parts and pieces of it into the old farmhouse one at a time for weeks before it was finally ready to be re-assembled. I happily scrubbed and polished every part until it shone like new!

This is not a photo of the actual Jenn Air stove top, but is the same model and style of the one that was donated to the new home project by a couple from our church.
A wide shot of the new galley kitchen. Double doors led to a laundry area just wide enough for a side by side washer and dryer. Directly across from the laundry area is a built in pantry. (Not seen in this picture.)
A view of the kitchen appliances and automated door leading out to carport. My husband had a remote control button mounted on his wheelchair that enabled him to freely open this door from a few feet away with a touch of the button.
A view of the dining room from the kitchen. Double doors between the dining room and living room (not seen) into the master bedroom. Carpeting was indoor-outdoor, with no padding to make it easier for the wheelchair to roll around on it.

A brand new roll in shower was also installed in the master bedroom.

A brand new 4′ X 4′ roll in shower, was built, located on one end of the master bedroom for easy access. A bathroom counter top and sink were also installed. Directly across from this shower was a half bath.

Construction took place for most of that year. Finally, in the second week of September, the house was complete and ready for us to move in.

A covered carport was built on one side of the house and custom made for a large van with a raised roof and a sliding side door with a wheelchair lift . A few years later, the carport was enclosed and was turned into two more bedrooms and a small family room to accommodate overnight guests.
The house had a sidewalk wrapped all around it to make it accessible by a wheelchair on all sides. French doors led from the master bedroom out to a 20 ‘X 20’ patio that was added after this picture was taken.

The finishing touch was the installation of a gold-plated plaque, which adorned the front door. It was engraved with the following inscription:  

“The House that Love Built ~ est. 1992.”

The weekend before we planned to move in, our spirits were at an all-time high. Family and friends volunteered to help us with the move. It was going to be a lot of hard work, but I couldn’t have been any happier.

Little did I know that my happiness would soon be fleeting.

AN UNEXPECTED WHIRLWIND – THE LONGEST 24-HOURS OF MY LIFE

In a bittersweet turn of events, I received an urgent phone call from one of my sisters on Monday of that same week we were poised to move in. She informed me that our father had suddenly passed away on Sunday. She wanted to know if I would be able to fly to California for his funeral.

My heart sank to my toes.

We had no money to purchase a plane ticket to California. Nor did we have anyone who could take care of my husband while I attended my dad’s funeral.

No one else knew how to perform our daily routine. That routine included:

  • toileting
  • bathing
  • dressing
  • transferring in and out of the wheelchair

My joy over moving into the new house soon subsided and became watered with tears. As the eldest child, I loved my *dad very much. I didn’t want his cremation to occur before I could say goodbye. I hadn’t seen him in several years and desperately needed closure.

I spent hours on the phone that week with all four of my sisters as we did our best to plan a funeral for our dad long distance. We lived all over the U.S., in four different states, so we had no other option.

To this day I am thankful that one of my sisters and her husband graciously offered to pay for my plane ticket. A dear sister in Christ and friend from church volunteered to come and stay with my husband for the time I would be away.

The plan was that she would keep him company, wait on and feed him and our daughter for the twenty-four hours I would be away from home. My husband would remain in bed the entire time I was gone. It was the only way to make it possible for me to attend my own father’s funeral.

So, on Friday of that week, I drove to Dallas and hopped on a flight to California. Upon arrival, one of my sisters (who lived in California) picked me up from the airport. We headed straight for the funeral home where we had a private viewing and said final goodbyes to our dad. That evening I attended dad’s funeral. His funeral was followed by a wake at my grandmother’s apartment.

Immediately following the wake, my sisters drove me back to the Sacramento airport. I caught a red-eye flight back to Dallas, arriving at sunup. Armed with a huge cup of coffee, I began the long eighty-mile drive back home.

THE TREACHEROUS JOURNEY HOME

About halfway home, I started to swerve across lanes due to sheer exhaustion. So, I pulled off the rural highway and parked on the shoulder of the road.

I locked all the doors, turned on the emergency flashers and left the motor running. I laid sideways on the front seat using my suitcase and coat as a pillow. I intended to sleep for thirty minutes or so in order to make it home safely.

While I dozed, a police officer pulled up behind me and tapped on the window. He wanted to know if everything was okay. I explained my long, sad story to him. I told him that now I was simply trying to make it home to my disabled husband before I collapsed in exhaustion.

He seemed relieved to know that my swerving was not because I was drunk. I’ve since learned that when people are as tired as I was, their reactions can appear as if they are drunk.

I was so grateful that he followed me at a distance for the next forty miles to ensure I made it home safely. Knowing he was following me kept me more alert than I would have been otherwise.

By the time I got home, I was so exhausted, I could barely see straight. I was running on fumes. Somehow, God gave me the strength to spend the first hour and a half after I returned home getting my restless husband out of bed and into his wheelchair. After that, I was finally able to crash.

A caregiver’s job can seem never ending at times.

But I was ever so grateful to God that the home I returned to was the brand new, comfortable house that love built. I had only lived in it for less than a week and already it felt like a little corner of Heaven. <3


LIFE LESSONS LEARNED

Be grateful for any good thing that comes your way. An attitude of gratitude will bring more of the same your way. Focusing on the positives in life leaves little time, energy or space in our souls for the negatives.

Let the word of Christ richly dwell within you as you teach and admonish one another with all wisdom, and as you sing psalms, hymns, and spiritual songs with gratitude in your hearts to God. ~Colossians 3:16

Into every caregiver’s life, a little rain must fall. So, save up whatever sunshine your soul can find in happy times to sustain you during the rainy seasons. How do you “save sunshine”? When times are good, take lots of pictures and videos. Write down your fondest memories of the people you love and happy events. Save, treasure and re-visit them all the next time the rain begins to fall.

For over all the glory there will be a canopy, a shelter to give shade from the heat by day, and a refuge and hiding place from the storm and the rain. ~Isaiah 4:6

Even in our moments of greatest joy, life’s curve balls can appear out of nowhere and catch us off guard and knock us to the ground. Sometimes the best we can do is to stand up, brush the dirt off and try again. Life is not perfect, and every day is not a home run.

The LORD opens the eyes of the blind, the LORD lifts those who are weighed down, the LORD loves the righteous. ~Psalm 146:8

Dealing with grief is tough under normal circumstances. Grieving the sudden death of a loved one can be even more difficult for caregivers. Be kind to yourself. Rest whenever you can. Don’t be too proud to reach out for the help you need. Do whatever it takes to find closure. Someday you’ll look back and be glad you did.

Have mercy on me, LORD, for I am in distress. My eye, my soul, and my body waste away with grief. ~Psalm 31:9

*******

*This blog post is dedicated to the memory of my beloved father, Chet Merriam. I will always love you, Daddy! Sending hugs and kisses to Heaven for you.

My father, Chet Merriam
~1936 – 1992 ~

THE HOUSE THAT LOVE BUILT – PART 1

FROM COLLEGE DORM ROOM TO COUNTRY FARMHOUSE

HOME IS WHERE THE HEART IS. . .

The old saying, “Home is where the heart is” certainly reflects reality for many family caregivers. We tend to be compassionate people who spend a lot of time at home with our loved ones, for obvious reasons.

But care giving can also drastically alter a family’s financial situation and require lots of changes and transitions when it comes to where they live and their overall quality of life. And that can eventually affect the well-being of the entire family.

While preparing to write this story, it dawned on me that during my fourteen-year care giving journey, the meaning of the word “home” became a continuous moving target for me.

Why?

We made five major moves in fourteen years. No wonder I was so exhausted all the time!

Here’s some background to help you understand the unique life events that led to our family moving into the House That Love Built. Some of these details were covered in earlier posts, but it is necessary to repeat bits of them here for continuity.

FROM HOMELESS TO LIVING IN A DREAM HOME

After my husband was released from nine months of in-patient rehabilitation, we were — in reality — homeless.

Before his accident, we were live-in caregivers in the lovely town home of a successful businessman who was wheelchair bound, in exchange for room and board. When he decided to get married, we taught his bride-to-be how to take care of him and made plans to move into our own place.

We put earnest money down on a home we planned to lease with option to buy. We were both employed full time with stable careers, and we finally had the income to move out of apartments and buy our first home.

The only challenge was that the home was being remodeled and would not be ready for move in until Labor Day weekend.

So, a month before our scheduled move to our new home, my husband’s parents offered us temporary housing.

We lived in a dorm room on the campus of the Bible college where they were superintendents. They let us store our furniture and household belongings behind the stage in the cafeteria on campus.

It was there on the Bible school campus that the freak accident which resulted in my husband’s spinal cord injury happened. Our daughter and I continued to live on campus during my husband’s lengthy hospitalization and rehab.

Fast forward to his release to return home after rehab. We had no home of our own to go to. I quit my job right before his release from rehab so I would be able to care for him and our daughter full time.

So, we were homeless and jobless.

We applied for long term Social Security disability income and prayed it would be enough to live on.

AN OFFER WE COULDN’T REFUSE

We soon realized that we were not going to be able to survive financially if we stayed in Houston. So, my husband’s parents generously offered us another deal we could not refuse.

They owned a fifty-year old farmhouse that sat on two-hundred and sixty-five acres in East Texas. The farmhouse mortgage had been paid off long ago and no one in the family had lived there for years. It would take some fixing up and remodeling to accommodate a wheelchair. But it was rent free housing on lots of beautiful land.

It seemed like the perfect place for us to start over, to rebuild our lives after my husband’s spinal cord injury. It even had a barn and pastureland with plenty of room for farm animals that our young daughter could enjoy.

I liked the fact that she would grow up in a rural area in a tiny school system where everybody knows everybody vs. a big city public school system. The tiny “cow town” near the farmhouse had a population of about 3,000 people. Most of them seemed like decent citizens, from what I’d been told.

So, on June 11, 1984 we packed our belongings, said goodbye to Houston and headed for our new home in East Texas.

This is not a picture of the actual farm house we lived in for eight years, but it is similar in shape and size to the actual house and was built around the same time, circa 1930’s. We found newspapers from the ’30s in the walls. We think it was used to insulate the walls of the house.

An entire caravan of family and friends camped out around the farm house in nearly a dozen RVs for the first two weeks.

Men scrambled to hammer and saw while women cooked up a potluck storm.

The first thing that had to be done was to build a long wooden ramp so my husband could roll from the driveway up to the front porch in his wheelchair.

To lift him in his motorized chair several feet off the ground meant lifting a combined total of around five-hundred pounds. It took several strong men lifting together to get him safely from the ground to the concrete porch until the ramp was built.

A used hospital bed was set up in the master bedroom with a twin bed next to it for me. Our daughter moved into a bedroom upstairs in what was originally an attic but was later converted to three bedrooms.

Next, the crew built a 4′ X 4′ tile roll-in shower off the master bedroom that accommodated a potty/shower chair and had a removable water nozzle that could reach all body parts.

It was barely big enough for the chair and one person to squeeze into the space between the wall and the chair. But we were grateful that we had a private shower off our bedroom because the only other bathroom in the house was down the hall and inaccessible without major home renovations.

They also installed a sink near the shower so I wouldn’t have to use the kitchen sink to wash and bleach his urine bag and other medical appliances.

Originally built in the 1930’s, the house already had wide doorways and a wide hallway. So no other inside modifications were needed. My husband was able to navigate his wheelchair from room to room without too much trouble after a little practice.

After installing and inspecting kitchen appliances and making sure the water well still worked, the yard was cleaned up and mowed. It was important to keep the grass around the house mowed so we could see the wild animals that lived on the land, should they approach the house.

The farm was home to lots of wild critters including snakes, gators, wild bores, raccoons, possums, rabbits, and more. It was the snakes in the grass I wanted to be able to see before they saw me!

This was all a bit overwhelming for me, a 25-year-old lifelong city girl who had never lived more than a few blocks from “civilization”. The farmhouse was a six-mile drive from town. To reach a decent-sized “city”, we had to drive at least an hour.

But I was grateful for the rent-free housing, the help of our family, friends and neighbors who helped us settled in, and the opportunity to build a new life. I didn’t have a clue what that new life would entail, but it had to be better than what we had just been through in Houston.

The old house served us well for about eight years but required frequent repairs and patch jobs. We relied on the able-bodied men in our church and other male friends we for most of the repairs.

Whenever help from others was not available, I learned how to use lots of tools I’d never used before. I did my best to keep both the inside and the outside of the house in working order.

Between full-time care giving for my husband and daughter, maintaining three acres of land, plus yard work and housework, I used to joke that I didn’t think I even sat down for more than ten minutes at a time the entire eight years we lived in the farmhouse! I worked from sun rise until after sundown every single day.

Time and the elements eventually took a toll on the house and on me. The men from church got tired of patching and repairing the old house every month. It was only a matter of time before it would become uninhabitable.

A MIRACLE OF MERCY

One day our pastor pulled us aside at church. He told us that the church leadership had met and decided to build us a brand-new home!

With the exception of the electrical and plumbing work (which required permits and brand-new parts), all materials would be donated from businesses in the community, the surrounding counties and all the way to sources in Dallas, eighty miles to the east!

Labor would be provided on a volunteer basis by skilled workmen from our church and others in the community who wanted to contribute time and effort to the project.

There were a few legalities to handle before construction could begin. Those were expected to take a month or two to complete.

We didn’t mind waiting one bit. We were so excited!

The new house would be custom designed for the wheelchair. It was going to be small, but well-built with quality materials. It would be energy efficient and generally everything that the old farmhouse was not.

The best part was that my husband (who was a professional draftsman before his injury) got to help design the entire home within a 1,232 square foot limit.

The project would take several months to complete, depending on weather conditions, availability of materials and manpower. But at least we finally had hope that we would have better living conditions within a year from the time the planning began.

The new house would be built on the same property (within a stone’s throw of the old farmhouse), but much closer to the main highway.

Our dream of home ownership was finally going to be a reality, a little less than ten years after my husband’s injury.

LIFE LESSONS LEARNED

  •  Learn to be content and “at home” in your own heart wherever life takes you. Grumbling and complaining because your living environment is imperfect only makes you and your loved ones miserable. I know what it is to be in need, and I know what it is to have plenty. I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want. ~ Philippians 4:12
  • Trust God to provide what you need (not necessarily everything you want) in His perfect timing. “And this same God who takes care of me will supply all your needs from his glorious riches, which have been given to us in Christ Jesus.~ Philippians 4:19
  • Understand that when you are truly unable to help yourself for legitimate reasons, God IS your source and He WILL send people with hearts of compassion to help and provide when you simply ask Him to do so. “Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened.…” ~ Matthew 7:7
  • Expect miracles! They are all around you. You just have to look for them and thank God for each one. “What do you mean, ‘If I can’?” Jesus asked. “Anything is possible if a person believes.” ~ Mark 9:23
  • Take nothing for granted. Not the roof over your head, the job that you have or the food on your table. Practice an attitude of gratitude by thanking God every day for every good thing in your life. “And give thanks for everything to God the Father in the name of our Lord Jesus Christ.” ~ Ephesians 5:20

Torture or Testing?

It was one of those days when everything seemed to go wrong before noon.

As I vacuumed the living room floor for the second time that day, I fell into despair. I thought about all the major life challenges our family had faced over the past several months.

For the past three weeks, the reality of what had happened to our family had been driving me crazy.

My husband had recently completed a nine-month rehab period, after his spinal cord injury. Less than a month later, we moved from the city of Houston to a small rural county in East Texas.

The fifty-year-old farmhouse sitting on over 200 acres of land was a gift and major blessing from his family. The paid off mortgage meant we didn’t have to pay rent. But the house was not in the best shape and was not wheelchair friendly.

So for the first two weeks, family and friends helped us do some remodeling. They built a wheelchair ramp for the front porch and a modified 4’X4′ roll in tile shower add-on to the master bedroom. I was thankful for all the help.

But after everyone left, as I watched the last car leave my driveway, the full gravity of the responsibility that was now mine alone hit me. It fell upon me like a lead blanket.

Negative tapes kept playing in my head over and over again. Questions and thoughts circled in my brain, non-stop for three solid weeks. It had been an eventful year. I was still processing everything and trying to come to a place of inner peace and acceptance.

But instead, I felt I was being tortured. I constantly obsessed over all we had lost and felt sorry for myself. Negative self-talk and questions resulted.

  • why us?
  • what had we done to deserve this?
  • how did we go from living a comfortable lifestyle to living at the poverty level?
  • this feels like pure torture!
  • why are we being tortured like this?

Suddenly, a still small voice within my soul whispered quietly: “Is it torture or is it testing, Melody?” PEACE. I immediately recognized my Creator’s voice. His question stopped those negative tapes from playing instantly!

Divine peace settled over me like a warm blanket for the first time in months. Torture or testing?

Hmmm …that put a whole new perspective on things.

Perhaps this was a spiritual test of some sort. If so, a choice lay before me. Was I going to continue my pity party for the rest of my life and remain miserable? Or would I stand up, shake off my negative mindset and view these hardships as a test of my faith?

I knew I would pass or fail this test, based upon my response at this moment in time. The torturous thoughts had gone on long enough. It was now or never.

Deep in my heart, I wanted to pass the test more than anything in the world. I wanted to find the life lessons in all that had transpired. I wanted to overcome. I wanted to heal.

I turned off the vacuum cleaner, sat on the couch and cried for the first time in months. The negative tapes in my head went silent. Divine peace filled my heart.

From that day on, I had hope that with God’s help, I would pass this test. No matter what it took.

I wasn’t alone in this struggle.

Romans 8:31 What shall we then say to these things? If God be for us, who can be against us?

Your Higher Calling

Author Unknown

How true this is.

As caregivers, it is so easy to lose sight of our higher calling.

In part, this is because we spend much of our time focused on our difficulties and problems, which in truth are many indeed.

Sometimes it helps to shift our focus to our Creator (the problem solver) rather than the problems. Look up!

Ask for divine help in those moments when you feel like giving up. Sometimes the answers come at the oddest times from the most unexpected sources.

Think about this: our Creator is an expert on any topic you care to name. He created it all and He knows how to repair it all. Ask for divine answers. He will guide you to them.

Give yourself permission to look at the bigger picture.

In the grand scheme of things, this is only one season of life on your personal timeline. It will end one day either by circumstance or choice.

My favorite mantra as a caregiver came to me as a divine download on a very tough day.

It simply says, “I can handle anything as long as it’s temporary . . . and if you think about it, EVERYTHING in this life is temporary!”

That one thought kept things in perspective for me and kept me going so many times during my difficult fourteen-year caregiving journey.

While you are here, try to identify the lessons that life is showing you. Try to envision your higher calling.

I know it’s hard. Some days it feels impossible to even imagine that one day it will all be over and then you’ll ask yourself, “Why did I go through all that?”

Perhaps it is because the lessons you learn now will help you later to understand, have deep compassion for, and be able to support others in their caregiving journey.

If you are a believer, remember that you are never truly alone. You have a divine helper that is available to you 24/7.

Run to Him and He will meet you right where you are, even in the midst of your imperfect circumstance.

Meditate on this thought today: “Greater love has no man (or woman) than those who lay down their lives for a friend.”

You, my friends are unique. You are special. You are one in a million. A rare jewel. A priceless gift.

You have a higher calling on your life.

Hurricanes and Halos

Note: This post contains content that may be emotionally disturbing to sensitive readers. Proceed with caution and plenty of Kleenex.


Hurricane Alicia was the first hurricane I’d ever experienced. It forever altered the path of my life, broke my heart and blew my future onto a completely uncharted path.

Here’s how it happened.

THE BEST LAID PLANS . . .

It was mid August, 1983 in Houston, Texas.

My husband, two year old daughter and I had just moved from the home of a quadriplegic man for whom we had been providing caregiving services over the previous year and a half.

He was about to get married, so we taught his new bride how to take care of him and made plans to move into a home of our own.

A month before we moved, we found a suitable home and made a down payment to hold it. The home was being renovated and would not be ready for us to move into it until Labor Day weekend, which was still three weeks away.

In the interim, my husband’s parents invited us to stay on the campus of a small bible college where they served as superintendants. School was out for the summer and only a small group of students and faculty still remained on campus.

We moved in to a small dorm room, put all of our possessions in storage, and settled in for was supposed to be a short and sweet visit.

During that same time period, we were also on a short list of families who were preparing to work in Saudi Arabia for a couple of years.

My husband was a talented draftsman and was invited by my uncle (who managed an international engineering design team), to move to Saudi to help his team design a city on the Persian Gulf.

We were in the final stages of the approval process and had begun receiving phone calls in the middle of the night (day time in Saudi), reviewing last minute preparations.

We were told we would be living in the family compound where the families of all American employees lived. We would be assigned a fully furnished rent free home near the worksite.

We were excited.

Plan “A” was that we would move into our new home in Houston, continue our careers, raise our children and settle down to build a successful life.

Plan “B” was that we would move to Saudi, work for a couple of years, save lots of tax free income and return to the U.S. to buy a home and settle down.

Life was good. Doors of opportunity were opening for us daily. 

We had no idea that Plan “C” was about to rock our world forever.

Hurricane Alicia

Here’s what Hurricane Alicia looked like on radar as the eye of the storm crossed onto land from the Gulf Coast.

Per Wikipedia, “Hurricane Alicia was the first named storm and first hurricane of the 1983 Atlantic hurricane season. Alicia was the season’s strongest and deadliest storm. It killed a total of 21 people and caused $2.6 billion (1983 dollars) in damage.”

We moved to the Bible college campus just as Hurricane Alicia was threatening to hit land.

The small but powerful Category 3 storm roared onto shore from the Gulf Coast and slowly cut a direct path, straight through the city of Houston, leaving a wake of devastation across the entire city and surrounding areas. 

Alicia not only killed many people, but also caused catastrophic injury and permanent damage in the lives of many families, including my own.

The bible college was located on the north side of the city, but was certainly not spared the fury of the slow moving storm.  Trees and power lines were down everywhere and roads were blocked. 

Everyone on the bible campus—in total, approximately two dozen people—had been hunkered down, sheltering in place for three days in the only brick portion of the building at the college—the administrative offices. 

There was no electricity, no way to get news updates on the storm other than battery operated transistor radios and food and water supplies were rapidly dwindling.

I recall sitting on a bench positioned against the brick wall in the outdoor corridor of the administrative building with my father-in-law.

We watched in awe as the fury of the wind bent and blew the tallest trees on the campus until the trunks were almost parallel with the ground.

It was a scary sight, and one I hoped the wind would not blow the school away by the time it was over. I had never experienced such a frightening storm in my entire life.

We were captives of Mother Nature until the slow moving storm finally blew over the area. Flash thunderstorms following for a full day or two after the main storm passed.  

It had only been four days since our move from the townhouse to the bible college. The events of that week happened rapid fire, leaving us no chance to recover in between.

Sadly, the week culminated in a freak accident that occurred on August 18, 1983.  That was the day my 27-year old healthy husband of nearly five years broke his neck and became paralyzed from the shoulders down, confined to a wheelchair for life.

Here’s how it happened:

The sprawling front lawn in front of the school looked like a lake. About four or five inches of standing water covered it. All the surrounding ditches were overflowing. Flooding was widespread across the campus, which was built in a low lying residential area.

This standing water proved to be too tempting for a group of about six or eight young men (mostly students) ranging in age from their late twenties to mid thirties.

After being cooped up indoors in small quarters for three days and nights, they decided as a group that they needed to “let off a little steam.”

So, they proceeded to take some large plywood boards and used them to “surf” across the front lawn of the school.

They all donned swim trunks and tank tops and took turns running, jumping and belly flopping on the boards, coasting until they came to a stop.

They were having a blast, and quickly drew a small crowd of onlookers from the school and the surrounding residential neighborhood.

My husband didn’t decide to join the group until after he saw how much fun they were having.

Meanwhile, the group became bored with surfing across the grass. Then someone got a bright idea.

“Hey, why don’t we go to the dorm building, climb to the second story landing, step in front of the safety railing and jump over the sidewalk and into the ditch? You know, we can do the ‘Nestea plunge’ (a term made popular by a TV commercial at the time). OR. . . we can do belly flops into the ditch!”

So, while my husband was changing into his swim clothes, the activities moved down to the end of the campus where the main three-story dormitory building stood.

A concrete external stair case with landings at each level wound up the face of the building.

The ditch that ran in front of the dorm building looked like it had three to four feet of water in it. We later learned that it only had about a foot and a half of standing water in it.

A concrete sidewalk separated the dorm building from the ditch. The ditch ran along the edge of the front lawn at the school. 

Someone ran to get a camera to capture the action shots.

I had been watching the antics up to this point, with mixed emotions. It was entertaining, but also a bit nerve wracking to see grown men acting like little boys.

While waiting for the second act to begin, I decided to walk back down the long outdoor corridor that ran in front of the main administrative building to check on our daughter, who had been napping.

As I walked in that direction, my husband, who had just put on his swim trunks, passed me in the hallway on his way to the opposite end of the campus to join the fun.

A strange feeling came over me as we passed each other and I instinctively looked back over my shoulder and called out to him, “Be careful!” I had a fleeting feeling that someone was going to get hurt, but quickly dismissed the thought.

My husband was a well built, muscular man who had been a star athlete in high school.

Once on a high school field trip to a track meet in a college campus in Louisiana, an Olympic team spotter saw his stellar performance and tried to recruit him to train for the Olympics. He played just about every sport you can imagine in high school and won numerous awards.

Even after we got married, I used to tease him all the time about his addiction to playing sports. The trunk of our car looked like a sporting goods store because he insisted on carting all of his sports gear around with him everywhere he went.

In all that time, he had never been injured because he was also very safety minded and took pre-cautions to prevent injuries every time he played sports.

Knowing all of that, I had never worried about his safety when it came to any of his sporting activities.

But this time, something felt “off.” Something was not quite right.

A few minutes later, just as I was about to carry our daughter down to the dorm building to watch the festivities again, my mother-in-law came racing up to me, her face as white as a sheet and tears flowing.

“Melody, you’d better let me take the baby—you need to get back down to the dorm building NOW… something terrible has happened. I’m going to call an ambulance.”

My heart sunk to my toes as she informed me that my husband had injured himself badly and it didn’t look good. She had been just seconds away from telling the men they needed to stop the shenanigans, which were against campus rules.

As she approached the scene, yelling for them to stop, she saw my husband push off the landing, jump over the sidewalk and attempt to do a belly flop into the ditch.

It was like watching a slow motion train wreck that couldn’t be stopped before a horrific crash.

Later we learned that because his shoes had slick red mud on them, the moment he pushed off the edge of the landing, he lost his momentum.

Instead of landing on his belly, one of his shoulders plowed into the saturated soil on the far side of the ditch, which held it in place, while his 200 pound body continued to flip at a 90 degree angle.

The moment of impact was caught on camera.

He was now lying face down in the water and was not moving.

At first, the small crowd of onlookers thought he was playing a practical joke on them. He was known to pull pranks like that, so no one on the scene who knew him well believed he was really hurt.

But he wasn’t moving at all. Seconds ticked by.

Finally, he managed to turn his head sideways out of the water just far enough to say to the other guys, “I’ve hurt my neck. I’m serious, guys. I can’t move the rest of my body. Go get one of the longer plywood boards, turn me over in the water and gently slip it under me.”

Always good in an emergency, true to form, he was the calmest person on the scene.

By then, I had just arrived, panting from running and couldn’t believe what I was seeing. It was like a waking nightmare. It seemed that my earlier premonition had come true.

I began to panic. It didn’t help matters any that a passing thunderstorm with accompanying lightening strikes started to drop rain again. My main concern was that the men get him inside before lightening could strike him.

I was crying and calling to the guys, “Please hurry! Get him inside the dorm building and out of the rain.”

All of us were in shock. Many of the guys were crying. We all knew it was a very serious situation.

After what seemed like an eternity, the men finally got the board under him and carefully carried him inside the dorm building. They placed him and the board upon which he was lying on top of a picnic table inside a common area.

Then, the long and highly stressful wait for an ambulance to arrive began.

Although his mother had called an ambulance as soon as the accident happened, the hospital staff informed her that due to the hazardous road conditions and debris, it might take them an hour or more before they could get to the school location.

Under normal circumstances, the drive would have been a short 15-20 minutes. But not today. Fallen power lines and trees blocked almost every road between the hospital and our location.

While we waited, we gathered around him in a circle and cried, held hands, prayed and did what we could to make him as comfortable as possible.

Knowing that it is not advisable to move a person after a serious injury, there wasn’t much more any of us could do.

I cushioned his head in my hands like a pillow, tears running down my face. I kissed his forehead and tried to comfort him as best I could, but I felt helpless.

My mind was racing and my imagination was running wild.

He was conscious, calm and talking. We were all very grateful for that. He didn’t seem to have any brain damage, but he could not move anything but his head and told us he could not feel the rest of his body at all.

The ambulance arrived about an hour after the accident.

After asking a series of questions to ascertain what had happened, one of the first responders removed my husband’s wet shoes and socks, took a sharp edged object out of his pocket and began to poke my husband with it, starting at his feet.

“Can you feel this?”

“No sir.”

He then moved the sharp object up to his calves, then his thighs, then his stomach and chest.

The same question was asked and each time, the answer was the same.

“No sir.”

Finally, when the first responder poked him on the top of one of his shoulders, he replied, “OUCH! Yes, I felt that!”

That is when I completely fell apart. I began to weep and wail uncontrollably, as if he had just been pronounced dead.

I KNEW he had broken his neck. Due to the fact that we had just been living with a man who was a quadriplegic, I knew intuitively that my husband was now paralyzed too.

I could tell from the glum looks on the ambulance crew’s faces that it was the worst possible outcome.

The rest of that day and into the night became a blur of flashing snapshots with swirling emotions attached to each one in my mind.

First, there was the harrowing ride to the hospital in the back of the ambulance, bouncing, bumping, swerving to miss trees, power lines and abandoned cars in the road.

My husband was in extreme pain and cried out every time the ambulance pitched and bounced. I was grateful that they did not turn on the sirens, which would have caused me to go into sensory overload.

It was twilight. The fact that there were no street lights working along the roads felt eerie to me.

When we arrived at the hospital, we were told they were running on auxiliary power only. That scared me, and I wondered if they would even be able to help him at all.

After they wheeled my husband into an area of the emergency room where I was not allowed to go, I stepped to the nearest pay phone to call our disabled friend whose home we had just moved out of, to tell him the shocking news.

When I heard his familiar soft spoken voice answer the phone, I began to cry so hard, I could barely speak. After explaining what had happened, there was a long pause while he gathered his thoughts.

He tried to reassure me that we wouldn’t know for certain if the injury was permanent until all the medical test results were in and evaluations completed. He told me that sometimes, depending on which cervical bones and parts of the spine are damaged, some people do go on to recover from injuries like this one.

I knew he was trying not to upset me any more than I already was at that moment, but I was inconsolable. I hung up the phone and sobbed. I felt like I was living in an episode of the old TV series known as The Twilight Zone.

Finally, I collapsed in a heap in a chair in the emergency waiting room. A nurse kept me informed of my husband’s status about every half hour. They wouldn’t let me see him yet, which only added to my high anxiety.

After a couple of hours of conducting medical tests, finally a doctor came out to speak to me. I didn’t want to believe what I was knew I was about to hear him say.

It was as if I went into a slow motion zone in my mind. Even my hearing became distorted. I wanted to cover my ears and run screaming for the door.

The doctor’s facial expression was worn and tired. I knew he did not want to be the one to who had to tell me the bad news.

The results of the initial x-rays revealed our worst fears: my husband had broken his 4th, 5th and 6th cervical vertebrae. Although his spinal cord was not severed, it was badly bruised and swollen, which I was told often has the same outcome: permanent paralysis.

I was told he was now considered to be a “C-5” quadriplegic, which meant he would likely never walk again; he would probably be paralyzed for life and confined to a wheelchair.

I suddenly felt dizzy. The waiting room began to swim around me. I was also extremely nauseated. My worst fears were coming true.

To complicate matters, the small regional hospital where we were that night did not have the medical specialists on staff or the resources to properly and fully evaluate his condition, nor did they have the equipment to stabilize him.

Time is of the essence to stabilize patients in critical injuries like this one. Under normal circumstances, they would have transported him by Life Flight helicopter.

However, because of the ongoing hurricane conditions that night, that option was off the table due to safety concerns.

So, a decision was made to transport him to a major hospital located in the Houston Medical Center. That meant another harrowing two hour drive by ambulance, given weather, road conditions and flooding.

My stress levels went through the roof during that wild ambulance ride through the blackest night of my life. My husband continued to writhe in pain at every motion of the ambulance.

I begged the ambulance crew to give him something for the pain, but they refused saying that until he was stabilized, that would not be possible.

By the time we finally arrived at the second hospital around 1:30 or 2 A.M., I was totally exhausted and numb. It was hard to believe that the accident had happened almost twelve hours earlier the day before.

Time was a total blur at this point.

They explained to me in advance about the medical procedure that had to be done. It involved installing what they called a “halo” into my husband’s skull. They had to drill four holes in his head and insert four thick metal rods called “pins”, one in each hole .

The rods were linked together in a circular shape with another piece of metal that wrapped around his head, thus the name of the ghastly device—“halo”. It seemed to me to be more like a crown of thorns.

Two additional metal bars ran parallel to the sides of his neck and were attached to a sheepskin-lined hard plastic vest that would keep him stabilized, unable to move his head for several months until the swelling in his spinal cord went down.

Again, they told me they could not give him anything for pain until the procedure was over.

As an Empath (natural healer and highly sensitive person, especially when it comes to dealing with the pain of others), I was horrified by that thought.

While the medical staff worked on him, I was slumped on the floor, leaning against the wall, waiting anxiously for it all to be over with.

I was within hearing distance of the surgery room where they were working on him, and I could hear him screaming at the top of his lungs as if he were being tortured. 

I covered my ears with my hands, put my head between my knees, prayed and cried. I was surrounded by a few family members who had followed the ambulance to the second hospital, but on the inside, I felt alone and lost.

At that point, I wanted more than anything to be by his side and comfort my husband, but I wasn’t allowed to do so.

So I begged God to send His angels and the Holy Spirit to guide the doctor’s hands and comfort my husband in my stead.

It was the first of hundreds of times that I would spend over the next fourteen years in a hospital setting: exhausted, waiting, praying and asking God to intervene during critical times of his recovery, rehab and ongoing medical treatments.

And that is how, in the blink of an eye, all our plans and dreams came crashing down.

Suddenly, the bright future I had envisioned for myself and my family became a giant, angry red question mark, scrawled hastily against a backdrop of dark storm clouds that threatened to destroy life as we had always known it.

Our life would never be the same.

LIFE LESSON: TRUST GOD IN THE MIDST OF THE STORM

I believe that all of us are on a specific life destiny path.

Often, the plans we make for ourselves may not be aligned with our life’s destiny path.

The storms of life can appear out of nowhere and toss us around like match sticks in a whirlwind.

As much as we would like to think that we are in control of our life circumstances, at some point we are forced to admit that we most certainly are not in control of anything that happens to us in life on this earth.

I also believe there is a benevolent higher authority in charge of the entire universe. I call Him my Heavenly Father. I have known and trusted Him since I was a small child.

He loves each of us as His creations with a supernatural love.

Like any good father, ultimately, He knows what is best for each of us.

Imagine a wise and loving earthly father who is teaching his infant child to walk. He sometimes allows that child lose its balance and fall to the floor in order to teach the child that it needs the father’s guidance, direction and support when walking across the room.

In this same way, starting with my husband’s injury thirty-six years ago, I’ve learned to rely on my Heavenly Father for guidance, direction and support, every time I make a decision or a mistake that causes me to fall or stumble.

Like that toddler, I reach out to Him, arms raised, crying out for His help. He gently picks me up, heals my wounds, and puts me back on the right path every time.

If we learn to yield our lives and our futures to Him completely in this way, He faithfully leads us through even the darkest storms of life and teaches us to trust Him with the final outcome in any situation.

In the story above, you read that I had created Plan A and Plan B for myself. Both plans looked good to me at the time.

But who’s to say that either of those plans would have turned out the way I planned them?

Would I have learned the life lessons intended for me?

Would I have ended up following the path I was destined to follow?

I seriously doubt it.

I was a hard headed, stubborn “wild child” who grew up in the 60’s and 70’s and I had a lot of pride and selfishness to overcome. Had I not been stopped in my tracks by my husband’s accident, I may have never grown into the person I am today.

Not that I have arrived, by any means. I have learned that I am a perfectly imperfect person. But I have also learned that personal development is an ongoing process, from cradle to grave for each of us.

Some of us stubborn ones just have to learn the hard way. Don’t ask me why that is, but I know it to be true for myself, anyway.

Just as wild horses must be “broken” before they can be useful, so must some of us.

Perhaps if we follow the path we are meant to walk, even if it is the hardest thing we’ve ever done in our lives, it all comes full circle in the end.

A life or heart once broken and then restored, is better able to serve others well.

As Kintsugi teaches us, broken vessels (or humans), once repaired become stronger in all the places where they were once weak and shattered.

I think about it like this: if I hadn’t walked this difficult path and learned its related life lessons, The Beauty of Imperfection would not exist to help other caregivers today.

It is my hope and prayer that each person who reads these words will learn as I did to trust God in the midst of each storm of life.

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